longears15
25th Jun 2010, 09:50 AM
I'm no poet, but I think poetry best sums this up. I wrote it one very, very dark night late last year when I was in such terrible pain that I hadn't been to bed - much less to sleep - in about a week - the only rest I was getting was when I was passing out from pain and exhaustion and I was so sick and so depressed that I didn't much care whether I lived or died.
For the record - CRPS stands for Complex Regional Pain Syndrome, formerly known as Reflex Sympathetic Dystrophy or RSD. Most of you will never have heard of it unless you either have it yourself or know someone who has it. Nobody can explain quite what it is or why it develops, other than that it is a neurological disease resulting (usually) from trauma and that it produces incredibly severe pain, swelling, colour changes in the skin and so forth. There is no cure and treatment is often far from straightforward especially when it is as severe as mine.
It's pretty personal stuff but now that I'm feeling better - still in crippling pain, still very sick, but more positive these days - I feel able to share it. We have some wonderful writers on here, and I'd love any feedback -positive or negative, as long as it's constructive - that anyone would care to give.
CRPS
Does the name matter?
For a rose by any other name
Will still have thorns.
Always tearing
Always burning
Never ceasing.
A life lost
In so many ways.
A once strong body
Slowly failing.
A beautiful mind
Giving up.
Hope
Disappearing.
The light at the end of the tunnel
Flickering out.
And another - not quite so bleak because it was only about my pain and not my depression -
Those who do not share this pain
Cannot understand it;
Cannot understand this disease,
This monster, that consumes me.
This pain
Unlike any other.
Unimaginable,
Until you've lived it.
The burning,
Tearing
Is all consuming
And never ending.
Understanding
Is only for me
And others
Who fight the beast.
Thanks guys
For the record - CRPS stands for Complex Regional Pain Syndrome, formerly known as Reflex Sympathetic Dystrophy or RSD. Most of you will never have heard of it unless you either have it yourself or know someone who has it. Nobody can explain quite what it is or why it develops, other than that it is a neurological disease resulting (usually) from trauma and that it produces incredibly severe pain, swelling, colour changes in the skin and so forth. There is no cure and treatment is often far from straightforward especially when it is as severe as mine.
It's pretty personal stuff but now that I'm feeling better - still in crippling pain, still very sick, but more positive these days - I feel able to share it. We have some wonderful writers on here, and I'd love any feedback -positive or negative, as long as it's constructive - that anyone would care to give.
CRPS
Does the name matter?
For a rose by any other name
Will still have thorns.
Always tearing
Always burning
Never ceasing.
A life lost
In so many ways.
A once strong body
Slowly failing.
A beautiful mind
Giving up.
Hope
Disappearing.
The light at the end of the tunnel
Flickering out.
And another - not quite so bleak because it was only about my pain and not my depression -
Those who do not share this pain
Cannot understand it;
Cannot understand this disease,
This monster, that consumes me.
This pain
Unlike any other.
Unimaginable,
Until you've lived it.
The burning,
Tearing
Is all consuming
And never ending.
Understanding
Is only for me
And others
Who fight the beast.
Thanks guys